The Patient Pathway Toolkit
The Patient Pathway Toolkit is a free, open-access resource created with and for patient organisations. It provides practical tools to help map the care experience, uncover challenges and transform insights into advocacy action. Whether you are facilitating a workshop or planning a campaign, everything you need to get started is available on this page — including downloadable guides, templates and a ready-to-use Miro board.
It was developed by Patvocates and is hosted by the European Patient Advocacy Institute, with the support of Boehringer Ingelheim (released under the Creative Commons Attribution-ShareAlike 4.0 International Licence – CC BY-SA 4.0).
It was developed by Patvocates and is hosted by the European Patient Advocacy Institute, with the support of Boehringer Ingelheim (released under the Creative Commons Attribution-ShareAlike 4.0 International Licence – CC BY-SA 4.0).
Toolkit Components
Use this visual Miro board template (via the Miroverse) to map the ideal patient pathway. Available for both digital and offline use. Requires a Miro account registration, with a free plan option available.
A step-by-step guide for understanding, visualising, and mapping the ideal care experience from the patient perspective.
Turn pathway insights into actions. Learn how to prioritise challenges and develop targeted advocacy projects.
A tool to support structured interviews with patients and caregivers for capturing lived experiences.
Use these prompt questions to ensure no challenges, insights or gaps are overlooked when mapping.
For those leading or planning to run patient pathway workshops, this guide provides preparation tips, facilitation techniques, and suggested workshop formats.
A list of common terms used in the toolkit, to ensure shared understanding among facilitators and participants.
Examples of completed patient pathways for reference, which were the results of mapping exercises conducted for the areas of colorectal cancer and pulmonary fibrosis respectively.